11PM
Well, we’re just going to pretend this afternoon didn’t happen! Overall, Apollo is still doing really well and far ahead of our expectations of where he’d be at this point...but he had a not-so-hot day and it got progressively worse. He started spiking a temp in the early evening and it continued until he fell asleep just now. Usually, he is as tough as nails and complains very little but he was really uncomfortable and in a lot of pain today. And the worst part, he said over and over, “help me Mommy, help me” and nothing I did helped.
The team is trying to figure out what’s going on since his heart rate is really high too. They bumped up a chest X-ray from tomorrow morning til tonight so we’ll see what that shows us. Please continue to pray for our brave boy who is fighting as hard as he possibly can!
His people were able to get him to crack a bit of a smile, especially seeing his daddy again.
And a side note - our little Juliette was proposed to like this today! Oh my heavens! The sweet (but forward!) fella got down on one knee and presented her with a paper ring. Her response, “I’m too young to pick now”. Amen to that, my wee one!
As many of you know when there are so many steps forward in the recovery process, there may be a little step backward along the way. Last night and this morning has been just that for our Apollo Wollo. First off, he’s still doing GREAT! He may have gone into a junctional rhythm in the middle of the night and his sats dropped a bit. He went back on low oxygen and had several EKGs which returned good results. Our beloved NP, Sarah, said this is common after the Fontan so we aren’t worried a bit.
Daddy came bright and early for snuggles and goodbyes before leaving to go back home. It has been so so so so nice having him here. He’s spoiled both of us and provided endless giggles. We both miss him already!
Apollo is tuckered out after a full morning of play in the playroom with one of our cute, little friends. Yesterday was such a big day too, full of activity so Apollo is worn out. We snuggled in bed for a bit, ordered lunch, and was told it was time to pull those pacing wires. Yes, please! Even though they’re much easier to remove than those horrible chest tubes, many tears were shed which was reflective of his overall feeling today.
When we returned, there was another wonderful surprise delivery from his aunts! Though he didn’t have much energy to show it, I know he was so happy to open up dinosaur lollipops. Who knew those existed?! He happily chose a brontosaurus to enjoy and said he was saving the rest for his brother “cause he likes the spinosaurus and others too”. Bless his sweet, thoughtful, and generous heart.
We’re under strict orders to rest this afternoon since he has to be monitored after the pacing wires. Gladly! It’s a rainy day and I only have one of three books left to finish during nap times. This picture from yesterday includes all sorts of gifts from cherished family and friends. We have been so loved from afar and appreciate you very much!
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